Rarest of the Rare: India’s First ‘Harlequin’ Baby Born to a Nagpur Couple!

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Last Updated:  | By: Lifestyle

Tot born in Nagpur, Maharashtra is believed to be India’s first known case of Harlequin Ichthyosis – a severe genetic disorder.

NAGPUR, INDIA - JUNE 12: A female infant affected by Harlequin ichthyosis, a severe genetic disorder, was born with almost no skin on her body on June 12, 2016 in Nagpur, India. Harlequin ichthyosis is a very rare severe genetic skin disease, which causes thickening of the stratum corneum of the epidermis. In such cases, the child's whole body is encased in an armour of thick white plates of skin, separated with deep cracks. PHOTOGRAPH BY Barcroft Images London-T:+44 207 033 1031 E:hello@barcroftmedia.com - New York-T:+1 212 796 2458 E:hello@barcroftusa.com - New Delhi-T:+91 11 4053 2429 E:hello@barcroftindia.com www.barcroftimages.com

The baby born in Nagpur, Maharashtra is believed to be India’s first known case of Harlequin Ichthyosis – a severe genetic disorder which leaves the entire body encased in armour-like thick white plates, separated by deep cracks.

NAGPUR, INDIA - JUNE 12: A female infant affected by Harlequin ichthyosis, a severe genetic disorder, was born with almost no skin on her body on June 12, 2016 in Nagpur, India. Harlequin ichthyosis is a very rare severe genetic skin disease, which causes thickening of the stratum corneum of the epidermis. In such cases, the child's whole body is encased in an 'armour' of thick white plates of skin, separated with deep cracks. PHOTOGRAPH BY Barcroft Images London-T:+44 207 033 1031 E:hello@barcroftmedia.com - New York-T:+1 212 796 2458 E:hello@barcroftusa.com - New Delhi-T:+91 11 4053 2429 E:hello@barcroftindia.com www.barcroftimages.com

A 23-year-old young woman gave birth by caesarean section to the baby girl at the Lata Mangeshkar Medical College and Hospital around 12.30 AM. A team of doctors, including Dr Yash Banait, Dr Prachi Dixit, Dr Meenakshi and Dr Nilofar Mujawar, were involved in the delivery.
“The infant was born with a congenital disorder, which occurs because of mutation in the genes. The overall incidence of Harlequin Ichthyosis is one in three lakh births,” noted obstetrician and gynaecologist Dr Avinash Banait, told.
Paediatrician Dr Yash Banait said the poor child faces a lifetime of treatment and daily skin moisturising.

NAGPUR, INDIA - JUNE 12: A female infant affected by Harlequin ichthyosis, a severe genetic disorder, was born with almost no skin on her body on June 12, 2016 in Nagpur, India. Harlequin ichthyosis is a very rare severe genetic skin disease, which causes thickening of the stratum corneum of the epidermis. In such cases, the child's whole body is encased in an 'armour' of thick white plates of skin, separated with deep cracks. PHOTOGRAPH BY Barcroft Images London-T:+44 207 033 1031 E:hello@barcroftmedia.com - New York-T:+1 212 796 2458 E:hello@barcroftusa.com - New Delhi-T:+91 11 4053 2429 E:hello@barcroftindia.com www.barcroftimages.com

He said: “There is no cure for this disorder. All that medical science can do is try to keep the baby alive.”
Doctors say they’re applying petroleum jelly and coconut oil onto the child’s skin and giving her a special nutritional supplement.

Harlequin Ichthyosis, which affects approximately 1 in 300,000 births, requires intensive care at birth.

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